Stress w/ the medical field
I have 2 children. My daughter Bailey just turned 4 and my son just turned 2. Both of my children have always been tall for their age. My son has always been of the charts for everything since he was born. He is just a big guy. Well I took him for his 2 year old checkup and no suprises, he was in the 100% for everything except his head circumference. His head in the last 6 months has grown almost 3 inches which is very unormal. They scheduled a CT scan for yesterday to see if he has a tumor, if there is blockage or if there is fluid on the brain. He has some speech develpomental problems, and no hearing problems. He has had other things over the last 2 years that there was no explanation for. So we go for his appointment yesterday and I told them that he had to be sedated. He would not lay still, but they didn't listen. They tried to hold him down, he bit them, he was on the brink of throwing up, and a hysterical mess. So since we couldn't get it done, we have to go back to have him sedated. I am him mom, why didn't they listen to me. I knew it wasn't going to work, but for some reason they thought they knew better than I did. It makes me angry that they tried and now I have to go back yet again. My son was up all night screaming, NO MOMMY NO. All I could do was cry with him and hold him. I am scared because I have to wait even longer to find out if there is anything wrong with him or he is just graced with an overly sized head.
I am sorry to vent. I just am angry that we again have no answers, I have to go back and I put my son through so much stress and got nothing accomplished. To look at him he looks like his head is just a little bigger than normal, but I notice the places where it is disporportionate. I think in the last week and half I have aged about 15 years!
Sorry again to vent. Just worried about my baby!
I feel what you are going through!
My son also has speech delays and other things. I feel that more can be done. Luckily, though I have been blessed with a Dr. who lets me come in and ask questions. We get him tested on Tuesday for color blindness.
Have you heard of First Steps? WONDERFUL Program! Contact me and I'll give you information and the name of the BEST TEACHER EVER! She is so helpful and they pay for tests and things to be done. All free depending on income. Some high income households have a $20 copay (I think), but everyone I know has always been free. They come to you ! You should try it.
I thought I had hard jobs before I became a mom. The times when you are helpless are the worst.I felt that way when my oldest had a MRI when she was 4 months old. I cried too. My thoughts are with you... feel free to vent!
mother of Bel, Ronny and Kinsey
First Steps
We are in First Steps. I love our Speech Therapist. She is amazing and does so well with my son. I love First Steps. Since she has been helping Cole he has made marked progress.
I am just stressing because my dr. is so worried about the size of Cole's head. Also because my mother died of a brain anyersum. I just want to know that my son has a very large head and be done with it. The waiting is killing me.
Amy
The Jewelry Lady!
I'm sorry
Oh Amy, I can't imagine having to wait longer! That is ridiculous, I can't believe they would do that to a 2 year old! I can't imagine ANY 2 year old would lay still for a CT scan. As the parent, you have every right to tell them to stop immediately, again request sedation, and walk out if they refuse! When Luke was 2 he fell at the playground and got a nasty cut right above his eye. After sitting in the ER for hours, they tried to fix it without sedating him too....he was also a hysterical mess, and they didn't get it closed up as good as they wanted. Geee, I wonder why? Luckily the scar has grown up into his eyebrow and he was fine, but still it was terrible to watch him be in pain and so scared. Sometimes I think that this stuff is so routine to dr. and medical staff that they forget about how the parents or kids are feeling.
Personally, I would make sure you aren't charged for that appt too! You told them it wouldn't work, you asked for him to be sedated....not your fault they wasted the appt doing it their way, which didn't work!
I hope you have a better experience next time, and I hope that your little guy gets good news. Keep us posted, and I'll say a little prayer for him. :)
Jessica
~ Mommy to Luke and Shawn
Just curious
What facility did this happen at?
Hospital
It was at St. Joe South Bend. I knew it wasn't going to go well when the woman said to my son, who just turned 2, lay really still like a statue. I looked at her and said, you don't have children do you? She said, How could you tell? Oh well. It is what it is.
Amy D.
The Jewelry Lady!
Sorry to hear this
We had the same thing happen with our son. He had red poop. So we had it tested and ended up in Fort Wayne at a specialist and going to the hositpal to get tests done. They did a scan of his upper intestants and he had to stay still for an hour plus. At this time he was 3 years old. Luckly I had taken his ear phones with us and some CDs that he liked and he layed there and listened to one of Tim McGraw's songs over and over again. We still never found anything out. We tried to tell the nurse that he needed to be sedated but they said that we would have to reschedule the appointment. We drove from South Bend to Fort Wayne for this appointment. I was not driving here again for it in a couple of days. So we did the best that we could with him. He did lay there perfect for the whole test but maybe the last couple of minutes. Do you know that to this day he does remember going to that hositpal and getting that test done. But he has had one other red poop many many months after the tests were done. He have been doing randam stool tests. And everything is coming back normal.
My question is why don't they think about the age of the patient and ask if you want to be sedated? Then again why don't they just listen to the parents of the children.
I sure hope that all of the tests come back normal and everything is ok.
Mommy of Aaron
sorry...
You have every right to worry about your son and I'm so sorry to learn what happened. It can be so scary...We went through an ER trip a few months back with our, then 18 mos. son, who was having breathing difficulites, which thankfully only turned out to be an "asthmatic episode". BUT, I totally feel for you. It was so difficult to see our son being held down to get his IV, (which the nurses had to do twice), and all his crying and screaming! He was so little...we were all so scared!
AND...Not being listened to by doctors and nurses has always been a big issue with me since I became a mother. Haven't they learned after all these years that a mother's intuition is FOR REAL and totally VALID in a child's diagnosis?! HELLO!!! There's a reason they want our observations...we know our children best, right?!
I truly hope everything works out okay..Be strong and good luck!
Lisa
I feel for you
We have been there and done that soooo many times I know exactly where you're coming from. It sucked but when Bekka needed a CT that was ordered by a Dr at Riley's I drove back down there to get it done there instead of somewhere up here. She had to be sedated. Every six months she has to have swallowing studies done and she can't be sedated for those and they are a fight. She may not be able to do alot of things but she sure is smart. When we go into the exam room she points at the door and waves bye bye :( it breaks my heart. I'm going into nursing and I really think that all healthcare providers need to have more training in areas such as compassion etc...
Melissa
Blessed to be Bekka's Mommy
Our miracle is Four!!
1 lb 5 ozs 13" to 29lbs 37 3/4" Time sure flies!