ANY advise would be helpful because the doctors aren't

Wow, it sounds like you've had alot of odd occurences.  I'm not sure what to say.  What about food allergies?  Could the vomiting or fever be caused from something she is eating?  The seizures are scary too. Luke had one right before his 2nd birthday (also during a really high fever), but we really got no answers from the doctors, unless they continued.  Hmmm....have you tried talking to a different doctor...second opinion?

Jessica
~ Mommy to Luke and Shawn

My DS who is eight now had similar episodes when he was younger. He never had seizures though. He would get extremely cranky, pale and would cry non-stop over anything. Soon after this, he would start vomitting continuously. He would finally stop when he fell asleep from exhaustion. Scared me half to death. Same thing with the doctor, he would be completely fine when we would get in. My ped doctor recongized this right away as migraines. I kept a food/activity/mood diary for a few months to connect some of the things that seemed to trigger them. Lack of sleep, not eating regularly or a few foods were the connections that we made that triggered the migraines. We had to learn what behavior signs to watch for and start giving motrin as soon as possible. That seemed to help and as he got older we tried a medication that helped with allergies and to prevent the migraines. He maybe has one or two a year now. He is now able to tell us when they are coming on. I would keep a diary of what she eats/places she goes/activities/sleep for a month or so. Then take this back to the doctor. If you don't get the answers you want, then go to a pediatric nerologist locally. If still no help, then go to Riley children's Hospital. You know your child best and if you think you are not getting the help or treatment she needs continue until you find someone who will provide it. Good Luck and I hope you find some answers soon.

Hi, I am a grandma but a young one! I am 46 and feel and act 26 most of the time! LOL The reason WHY I am telling you my age is because with age comes "experience" an hon I've had a lot of bad luck also...the reason WHY is becuz these Dr's in South Bend/Mish area don;t know much at all!!!!! As you are finding out. If anything I say helps, let it be this: TAKE HER TO A PEDIATRICIAN OR ?? OUTSIDE OF SO. BEND AREA! Go to Riley's or??? anywhere where they specialize with babies....use the internet for your resourse and don't wait. THis sounds bad. If you can, before your appointment, have things written down. Like dates, what happeneds, be detailed. The MORE you can tell them, the better they can treat her. GET OUT OF THE SOUTH BEND AREA! If you need help finding a children's hospital, I can help you. If you can't get there---I can try to help you too. May I ask what type of health insurance she is on? Let me know. Tina (Kaitlinsgrandma).
My email address is: jtmathes24@sbcglobal.net.

My daughter, who is now four, was diagnosed with Chrontic diarehra ( I know that is spelled wrong, sorry)when she was two. I dont care what " diet" you put her on, it happened all the time. BRAT diet, no sugar diet, no dairy diet, no wheat diet, high fat diet, high sugar diet- nothing changed, she would have horrible diapers and her butt was always red because it was soo acidic. Did labs of her urine and stool ( let me tell you how fun that was trying to get loose stool in a little plastic jar and turn it in to someone...) THEN when she was two, she had a fibral siezure. it was the scariest thing EVER and she has had two since then. We have seen every specialist known to man ( went to Rileys) and to no avail, there were no answers. We saw a stomach specialist in Ft. Wayne with a crazy long name ( now, since this is passed, I have heard he has a horrible rep, so dont I feel like a great parent) he was the one that diagnosed her. As for the siezures, they are extremely common in this age group, and once you get them, you can have them up to the age of ten, with no other reason other than your fever spiked and you body does not know how to handle it other than shutting down and restarting. She had her most recent episode when we went to the Hanna Montana movie in Elkhart. My husband never saw her having a seizure before and he was completely freaked out. the only good thing is, I know the signs. She gets extremely cranky, she has a low grade fever of 98 degrees ( when testing in the ear, make sure you get a thermonter that will work in the rear end area, this last time the ER ( in Elkhart) tested her ear first and it came back as 98 degrees, however, they then tested her in the rear, and it was 103- the ear therm. does not work for her as it does not accurately test for her.. and on a side note, the box on a ear one states that it is normally two degrees off).
It is extremely scary when your child has this and there are no answers. I hate to say that when she turned three( except for this last seizure) everything stopped. She had normal bowel movements, she could eat whatever and everything was fine. My girlfriend, her daughter threw up too, and when she turned three, it stopped. I dont know what the deal is with this age, but it seems when they past this milestone, it normally ends. She would tell me this and I would think, well, that is your child, you dont understand what this does to her and to me, and I dont think it will end, and I had to eat my words.
Whenever she has an epsiode, I would always call the doctor because I wanted it noted in her records, and I would put in my notes as well because if it ever came back that she did have something, I wanted it recorded, that one, I was on top of it, and two, I was going to sue the stinking pants off of them as I TOLD them something was happening. What I do with my daugher, is pay attention to her. Is she cranky, is she " out of it"- even if she does not have a fever, or at least I can not detect it, I give her fever reducing medicine as I dont want her to have a seizure. I also give her some sort of sugar water to make sure her blood sugar is up.. i dont know why but I have heard that helps, and so far it works for me. Doctors from many places have told me to keep her drinking as much as possible if she shows symtoms, and it could be pop, water, icey popicles, whatever, it just helps her body to stay cool. As for when she didnt have one, but acted like it, my daughter has done that to me on numerous occastions, and again, gave her medicine right away, and made her drink. I know, this does not help with the throwing up, but I have been there and had a friend too, and it passed once they turned three.

Thanks to everyone for your thoughts and suggestions.

I talked to the doctor and the are going to get Madison in for an EEG to check her brain waves and possibly a CAT Scan depending on the results of the EEG. They also want me to keep a diary of the incidents when she is puking, what she ate, what she did, etc. I am so relived they are finally taking this seriously and not blowing me off but at the same time am sooooo worried that something could be really wrong.

Well it's 10:30pm and she's still up,, the goal is to keep her up until midnight and wake her up at 4am. They said she can only have 4 hours of sleep the night before the test so she is sleep deprived and sleeps through the test. I am really nervous about the results and hope that I am just being over paranoid and they will all come back negative, although I would still always wonder what caused the episode last Monday and there is still the issue with her puking all the time. The test is at 1pm and I have to go to work in the morning which should be lots of fun on 4 hours of sleep but hopefully we will all get lots of rest tomorrow night.